Just when I thought my kids had been through enough, something else gets tossed our way. Today, I got news that my sweet baby, Rose, has scoliosis (not a big deal) caused by a rare congenital spinal defect (quite a big deal.) Butterfly vertebra - never heard of it? Me neither, until today. Sounds pretty, but it is not. Not a stranger to rare spinal defects (a different one runs in my family) this one has floored me all day. We get to see a battery of doctors next week to see what can be done and when. As she is only 2-and-a-half, she might be too little still to do much yet. I am so upset I don't know what to do. All I have ever wished for my kids is that they have a safe and happy life, and never to have to experience the chronic pain issues and debilitating movement problems that spinal problems can cause. I don't get to give that to her, and it breaks my heart.
I have been super busy crafting away trying to provide for my family. I will be even busier, I have a feeling. I plan to keep blogging away - if only to vent a little bit.
3 comments:
Dear Ana. Thanks for sharing your feelings of powerlessness with us. I hope you have good people around you.
Thanks, Mette. I had been finding tremendous support from places that I didn't even consider. I really appreciate your kind words.
Hi Ana. I was wondering what were the signs before you received the diagnosis??
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